Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 5 August 2014

Yet More Good News !

I consider myself extremely fortunate. Yet again my clinic appointment has brought good news. Perhaps not unreasonably I remain obsessed with my test results. At each clinic I provide blood samples. The consultant gets real-time test results for such measures as red and white cell counts. These indicate my general health.

The tests which define my cancer progress take some time to prepare and accordingly are reviewed at my next appointment. The good news I refer to above, therefore, relates to blood tests taken 28 days ago. My LITEs continue to show improvement. This has now been the 6th month in a row showing improvement. The normal ratio range is 0.26 to 1.65. My latest LITEs ratio is 3.22. OK so it is above the normal range but in December 2011, just after I had been diagnosed, the ratio was 1247.14 ! Clearly the treatment which I've received has worked and brought the pesky myeloma under control. I am so grateful that I live at a time when modern treatments have been developed, authorised by NICE, and received funding.

Last month I reported my quest for "a certain other aircraft". Well, the saga continues. It required a part which was ordered from the USA. It will not be until the middle of this month (maybe later?) before I can view the aircraft and decide whether it is for me. I confess to not being very patient!

Somehow I've volunteered to be Treasurer/Membership Secretary for a local aviation group. I will shortly be shown how the role is performed (training?). Unless someone else volunteers, then I will be appointed at the AGM early next month.

Nelson Mandela is famous for many quotations. This one seems apt:


We must use time wisely and forever realize that the time is always ripe to do right.



Keep well and KBO

Stephen