Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Thursday, 9 July 2015

Good Reason to Celebrate

On the 18th July 2012, I was discharged from the haematology ward at Bristol's BHOC. I had just received High Dose Therapy and Stem Cell Transplant. Now three years on I have just attended my monthly consultant's clinic where my blood tests remain most positive and I was prescribed cycle 36 maintenance therapy. I have every reason the celebrate!

In the last three years my health and quality of life has gradually improved to the point that I feel better than I did before I was even diagnosed. Yes I have some back ache, yes I can get a little tired. Neither condition stops me leading a full and rewarding life.

Of course it's also summer! Blue skies and warmer weather make us all feel more cheerful, and it's the season for air displays! With three good friends I journeyed up to the RAF Cosford air day. The weather wasn't perfect but we were treated to a wide range of flying including visits by the Red Arrow (who put on a magnificent show despite the limited cloud base), and from Avro Vulcan HX558 piloted by Bill Ramsey and Martin Withers. It was Martin Withers who piloted XM607 all the way to the Falkland Islands. HX558 is the only flying example of this cold war bomber and sadly will be retired at the end of this season never to fly again.


The following weekend saw many of the same aircraft display at Weston-super-Mare. I have certainly "overdosed" on the Vulcan!

Happiness resides not in possessions and not in gold;
the feeling of happiness dwells in the soul
(Democritus)

Keep well and YOLO

Stephen