Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 16 February 2016

Confidence Returns

Last month I reported an increase in my Kappa level to 51.3 that might have been an early indication of relapse. I attended my clinic appointment today and happily my Kappa has reduced to 47.9 thus I'm still OK. This of course comes as something of a relief. It is possible that the rise was due to the bad cold I had over the Christmas period. As I mentioned, there is still some debate about the interpretation of Free Light Chain Assay results.

On Sunday both our sons, our daughter in law, future daughter in law, our grandson, and a springer spaniel all arrived. Except for the spaniel the others have gone off to Val d'Isere for a week's skiing.  Brown in colour the dog has the apt name of Cocoa ! Apparently does not refer to her colour and should be "Coco" after Coco Chanel !


I have to confess that Cocoa has now calmed down somewhat since her puppy days and now represents an ideal reason for me to go for a walk. She also entertained us today by nearly catching our dinner - a pheasant that had foolishly wandered into our garden !

Another source of amusement today was a Shaun the Sheep:


These colourful creations had been displayed through Bristol and London before being auctioned for charity. It would seem that this one has found its way to this location just outside Bristol Childrens' Hospital.

Each month my blog takes a theme. This month it is perhaps appropriate for me to choose confidence and thus this quotation:

When you have confidence, you can have a lot of fun.
And when you have fun, you can do amazing things.
Joe Namath

Keep well, and remember YOLO
Stephen