Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Thursday, 17 March 2016

Sore Posterior

I saw the consultant this week and things continue to be most satisfactory. No detectable paraprotein and a Kappa reading that has again reduced. Having had a mean value of about 25, the reading had jumped up to 51.3 in December. It reduced to 47.9 in January and the latest reading, for February, is 46.5. You will see that the rate of reduction has reduced but, importantly, it has gone in the right direction.

You might have questioned the strange Post title. Well on Saturday Margaret and I went up to Bristol to attend a concert in the Colston Hall. The piece was the choral work Bach's St.Mathew's Passion. Whilst the music was wonderful, the seating certainly wasn't. By the end of the concert, we were both somewhat sore !

I've just been out for a walk along the Strawberry Line. Formerly a railway that interconnected several villages and carried, yes strawberries, it is now a scenic pathway of about 30 miles.


As can be seen in the photo, the route even includes a short tunnel. It will be interesting to watch how the views change with the seasons.

Right then, back to work redecorating and re-carpeting the kitchen, then the grass needs cutting -

man's work is never done.


Keep well, and remember YOLO
Stephen