Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Friday, 15 July 2016

Old Haunts

Again, I recently visited my consultant and my results were good with no detectable paraprotein and low free light chains. I was thus prescribed for cycle number 49. It doesn't take much to realise that next month, if I'm still in remission, I will be prescribed for cycle 50.  The staff at BHOC have made it clear that this will be something of a milestone.  Let's hope that the news remains good.

Since my previous clinic appointment, Margaret and I spent a few days in Northern Ireland. To explain, my first posting after training was to RAF Bishopscourt in Northern Ireland. Originally developed as an airfield in WWII it then became Ulster Radar with two huge radar systems, one on the former airfield and one at nearby Killard point. As such it provided long range surveillance for both civilian and military air traffic.  I joined the communications section providing high power UHF and VHF services.  We even provide the communications for the Concorde supersonic trials which took place over the Irish Sea.  I arrived in April 1975 and we married in the November.  Margaret immediately joined me so in effect we did not have a honeymoon. (we've made up for that since !). We were finally posted away in April 1977.

Being very junior in rank at the time, I didn't qualify for service accommodation so I successfully applied to live "off camp".  Initially we lived in the coastal village of Killough, but soon moved to the charming village of Strangford.  Our return trip started with a visit to the recently-opened Titanic Experience located in the famous docks area.



Well worth a visit, the impressive building houses a combination of audio visual displays which tell the story of Belfast's shipbuilding heritage, the construction of the famous liner and her ultimate demise.

We then drove on to Strangford where we booked into a very comfortable and friendly hotel.  When the weather allowed, we were able to walk around the village and especially to our former home.



Our home, of 40 years ago, was the lower of the only two bungalows in Quay Lane and within yards of Strangford Lough.  Across the lough is the village of Portaferry. During our trip, we were thus able to eat dinner in our own hotel and also, by taking the ferry, to eat across the water.  

Each day we had trips out to the site of the former RAF station and down the coast to Newcastle (with views of the majestic Mourne Mountains, and to National Trust properties of Mount Stewart and Castle Ward.  

This proved to a short but very enjoyable and fulfilling trip. Strangford was, and still is, a very special place for us.

And so to choose this month's saying:

Sometimes you will never know the value of a moment until it becomes a memory
(Dr. Seuss)

Keep well, and remember, YOLO
Stephen