Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Friday, 25 November 2016

Remembrance

It is becoming almost routine to report that I have visited my consultant and again my results are fine. Because of this I've been wondering whether this blog is more about my everyday life rather than my experiences of myeloma. In the new year I will probably make my posts less frequent.

Looking at my diary, I've had a very busy month.  Having previously decided to retire from private flying, I never-the-less attended the Military Civil Aviation Safety Day at RAF Halton.  It proved to be most informative though I was reminded just how cold and draughty an RAF hangar can be !  The following day (again don't forget I've retired from flying) I visited an aviation importer to look at an aircraft type - very, very interesting !

I've had two days in court this month and also attended my annual continuation training.

Perhaps most significant was my annual attendance, as a JP, of Bristol's Remembrance ceremony. This year's was somewhat different than previously.  It would normally take place around the cenotaph in Colston Avenue but the area is currently undergoing significant building works.  A new venue was thus arranged in Queen Square.  This proved to be most suitable.

Picture Bristol Post

2016 has also been the year when we remember the WW1 battle of the Somme.  Bristol hosted an extraordinary art installation comprising 19,420 figurines, each in a burial shroud, which had been laid out on College Green and signified the number that died on just the first day of the battle.  I can only describe the sight as deeply moving. 

Picture Matt Cardy/Getty

This months saying was especially easy to choose:

Do you not know that a man is not dead while his name is still spoken?
Terry Pratchett


Keep well, and remember, YOLO
Stephen