Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 21 December 2016

Hugs !

I attended clinic again this week and I'm pleased to say my results remain good; still no detectable paraprotein and even an improved Kappa reading. Thus, as the end of the year approaches, I'm still in remission.

During my clinic visit I needed to visit the day care unit.  Just for once the ladies who so kindly fed me during my stay on the ward (four years ago) were in their kitchen.  It was wonderful to see them again and to receive such amazing hugs.  I then went to the Trials Pharmacy to collect my medications.  I'm not content to walk through the streets of Bristol with a bag that is labelled "NHS Pharmacy".  It seems to be inviting trouble.  I therefore always repack the contents into my backpack. In so doing, I discovered a Christmas card from the pharmacy team - charming.  I never find my clinic visit a chore and this one was so enjoyable.

Christmas started for Margaret and myself with our customary attendance of Handel's Messiah.  Again, we went to the Colston Hall in Bristol.  We have learnt that, although those held in Cathedrals such as Bristol or Wells can be quite wonderful, we struggle with the cold and draughts!  This year's concert proved to be truly superb; a small but very professional orchestra, an excellent choir, and four wonderful soloists. Yes, we stood for the Alleluia Chorus (a tradition first started by King George II).
Next will be the Festival of Nine Lessons and Carols from King's College Cambridge.  Over the festive season we will be visited by both our sons, their wives and our grandson; traditional and oh so enjoyable.

I was born "a little while ago" and I recall that in my childhood Christmas trees were always real.

They smelt fantastic but as they dried out they started to drop their needles.  They also became increasingly inflammable.  It is therefore extraordinary that instead of the lights we now have, trees were decorated with real lighted candles.  .


I wonder how we survived !





No quote from me this month.  Instead I wish you a very happy Christmas and a peaceful, prosperous and healthy New Year.

Stephen