Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 6 December 2017

Early Christmas Present

I attended clinic again this week and with an expectation that my myeloma would be deteriorating.  I was wrong!  My blood test taken in October showed a further paraprotein count of 8 - just the same as that taken in August.  It would seem that I am currently, and happily, in a period of plateau.  My full blood test taken at the appointment showed everything to be normal.

So why had I expected worse results especially as I have no new symptoms?  I have spent much of my career as a communications engineer thus thinking like an engineer and tending towards being proactive rather than reactive.  I am aware that some myeloma patients are desperately upset when told they have relapsed.  I had sought to prepare myself for relapse.  As it transpired I need not have!  Perhaps amusingly, the Trials Nurse had come to talk to me whilst I was waiting to be seen by my consultant.  I had interpreted her presence as a further indication that things were worsening!

The consultant said, and I paraphrase, "you have some way to go yet".  I do not have to attend clinic for another two months. This is truly good news and an "early Christmas present".

Since my last post, the most notable event has been my attendance of the Remembrance Ceremony in Bristol.  As a magistrate, I have the honour of being invited to join the Lord Mayor's procession to the Cenotaph.


Last year, due to major building works, the ceremony was held elsewhere in the city.  This year there was something of a dash to have everything ready for the return to the cenotaph.  Just as in previous years, the public support for the event was truly extraordinary.  For over 20 years the weather has always been good.  This year we were treated to a thorough wetting with both rain and hail.  Everyone respected the occasion and remained in their places.  The picture shows the centotaph after the ceremony and now cleaned, resplendent with wreaths and surrounded with the new paving.  Well done Bristol !

I offer no quote this time but do wish you a very happy Christmas and a peaceful, prosperous and, of course,  a healthy New Year.

Stephen