Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Friday, 9 February 2018

Wonderful Experiences

My previous posts have recorded that I was withdrawn from the Myeloma XI trial because my paraprotein had again become detectable.  More recently there was a suggestion of a plateau.  My latest blood test result, taken in early December, shows a further increase in count to 10 perhaps suggesting a slow move towards relapse.  I don't seem to have any recognisable symptoms and my general blood test results (haemoglobin, white count, neutrophils and platlets) don't show any deterioration so, at this week's clinic, my consultant remains content for me to not return for another 2 months.  Only time will tell.  In the meantime I am relishing life!

Here we are well into February and I choose to write about Christmas - but with good reason !
Christmas for us starts with attending a concert featuring Handel's Messiah. Unusually, in 2017 there was no performance in Bristol.  Much to my surprise Margaret booked seats in the Royal Albert Hall.  We travelled up to London by train and booked into her favourite hotel.   After an enjoyable meal we walked the short distance up Exhibition Road to the Hall.  Taking our seats, the quality of the decorations was immediately apparent.

We then saw how many choir members there were combining: Goldsmiths Choral Union, English Concert Chorus, Highgate Choral Society and the London Chorus.  I estimated 400 choristers.  The official web site suggests 500 !  You can try to count if you like. They extend right up both sides of the organ.  They were supported by the Royal Philharmonic Orchestra conducted by Brian Wright.
The music was sheer bliss and the audience was suitably appreciative.  The applause was almost as loud as the music had been.  All in all, an extraordinary experience, and never to be forgotten.


Breaking with tradition, we celebrated Christmas at our elder son's home.  Having only recently moved into their new home he and his wife entertained a total of ten people for Christmas lunch. It was truly wonderful to meet up with everyone at such an enjoyable occasion. Our younger son kindly accommodated us in his flat so we wanted for nothing over the festive season.  We had much to be thankful for.

Joy in looking and comprehending is nature's most beautiful gift
Alber Einstein

Keep well

Stephen