Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 6 June 2018

OnTrial ....

.... and not in a legal sense !

Yesterday, I attended my consultant's clinic and was prescribed for my new clinical trial: Myeloma XII.  I thus returned home with a carrier bag containing multiple medications.  Only three (Ixazomib, Thalidomide, and Dexamethasone) are the actual trial drugs.  All the others are to minimise side effects.  It was clear that I needed to take some drugs in the morning and Thalidomide in particular at night.

It might seem strange but I am content to now be on the trial.  It is a recognition that the myeloma has relapsed.  It means regular (monthly) clinic appointments, no more qualification tests, and above all progress.  Over the last few weeks I have been subject to so many tests.  Many of these are very expensive and require considerable expertise.  I am indebted to the NHS and to all the personnel with whom I have come into contact with.

Health is the greatest gift,
contentment the greatest wealth....
Buddha

Keep well

Stephen