Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Thursday, 2 August 2018

Third Re-induction Cycle

Earlier this week I attended my consultant's clinic and received the good news that my myeloma is responding to treatment.  As I started the cycle number 1, my paraprotein count was 13.  At the end of the cycle the count had reduced to 8.  Because the result of paraprotein testing is not known for about two weeks, I won't know the result of cycle 2 until my next appointment.  The news is good and makes the various side-effects worth tolerating. Importantly, I was prescribed for cycle number 3.

I continue with my usual cheerful demeanour and decided I needed a project to keep me inspired (and perhaps a little busy).

My new toy
A long time ago I owned a Mark 1 (Frog-eyed) Sprite and enjoyed driving it around the country roads of my then home in Yorkshire. Much later I had my first sight of a Mazda MX5 and wondered if perhaps I might one day own one.  This is a 2003 model with a 1840 cc engine developing 146 BHP.  It does have a number of jobs which need attention and I relish the opportunity to make the necessary improvements.

Our family has the habit of applying names to inanimate objects and this would be no exception.  I decided that, as I hope the MX5 will be a trusted servant, it should take the name of a butler.  I decided on the name of Brabinger who was butler to Audrey Fforbes-Hamilton in the TV series "To the Manor Born".  This purchase can perhaps be seen as a sign of my confidence in my future.  Its care and maintenance will certainly keep me busy!

At a very enjoyable social event last evening it was suggested that I have a "glass half full" attitude rather than "glass half empty".  I corrected the suggestion by pointing out that as an engineer I considered the glass to be the wrong size!

Keep well
Stephen