Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 27 November 2019

Maintenance #7

The title of this post says it all - I've been prescribed for maintenance cycle number 7.  My platelet count remains below normal, but is within safety limits, and is within the criteria for the Myeloma XII clinical trial.  Dare I risk saying that I actually feel quite well?  I've recently been installing a new cooker hood in our kitchen; a task that has involved several physically difficult steps.

Since the last post we've had the pleasure of a visit from our elder son, his wife, and our grandson.  This coincided with my annual honour to participate in the Lord Mayor of Bristol's Remembrance Parade.  This starts by assembling in the Bristol City Hall then processing to the cenotaph for the traditional service.  We the return the way we came.  It is so special to see so many members of the public, often with children, who have taken the trouble to attend the ceremony.

Each year I provide a Remembrance cross which is planted by the Royal British Legion in the Field of Remembrance at Westminster Abbey.  This year it was opened by  HRHs Duke and Duchess of Sussex

Click to enlarge



Poignantly, our grandson gave me a Remembrance cross which I labelled in memory of my uncle, his great great uncle, before planting it at our local village church. 

Let us hope that his generation will grow up to understand the horror and futility of war.






It seems right to continue to offer a piece of music.  This one is always played as part of the Remembrance ceremony at cenotaphs.


Keep well
Stephen