Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Friday, 27 December 2019

Maintenance #8

It's Friday and this has been a truly busy week !

On Monday, finishing at 2am on Tuesday, I was involved with my voluntary work.  Later on Tuesday morning I was in Bristol for my monthly myeloma clinic.  Yet again, and having had the ubiquitous blood test, I was prescribed this time for maintenance cycle number 8.

On Tuesday afternoon we were first joined by our elder son, his wife, and our grandson (now 6 years old).  Later our younger son arrived and we all sat down to the first of several family meals.  Margaret is an excellent cook and always seems to have the correct ingredients (despite a certain supermarket).  I managed to watch the Festival of Nine Lessons and Carols.  Given the modern commercial emphasis, it seems more than ever necessary to remember what Christmas is really about.

Wednesday was, of course Christmas day which started with sounds of glee from our grandson.  On going down the scene was one of multiple presents and a very happy young man.

Yesterday was rather more peaceful and our younger son and I were sent to buy bread.  On the way we stopped to admire our village church of St. Andrews.

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This is a 15th century parish church.
The interior features a finely carved rood screen which was installed in 1522.  The font was carved during the early 1400s but is considerably older.









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As we gazed up at the 100 foot tower, a gentleman came up and started to talk to us.  I remarked how difficult is to hear the bells because many of the original openings had been closed over.  He then invited us to climb the tower!

Soon we were in the room where the ringers assemble.  From the room is a window looking down over the interior of the church.  At a further level we were shown the 1844 clock mechanism.

Soon we climbed further and entered the gallery where there are ten bells arranged over two levels.  Climbing higher we finally emerged on the roof.  Although the weather was not especially kind, the view was never-the-less truly fantastic.  This will be a memory to treasure given by our very generous guide.

Now today, all our guests have departed.  The house seems strangely peaceful.

Christmas is a season not only of rejoicing but of reflection
Winston Churchill

I wish everyone a very happy and healthy new year

Keep well
Stephen