Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 31 March 2020

Review 31st March

Since my last post, the emergence of COVID-19 has affected us all.  I've received a letter confirming that I am in the high risk category meaning that I must take particular care to avoid infection.

Today I was due my routine consultant's appointment.  I should explain that this normally would involve entering a small waiting room, then giving blood samples before returning to the waiting room prior to being seen by a doctor.  Instead I was phoned by the Bristol Haematology and Oncology Centre (BHOC) to advise me of changes.  I was to attend the BHOC yesterday for blood test and I would be phoned today by a doctor.  Yesterday I had the surreal experience of driving into Bristol.  My route took me past Bristol airport.  Even with the limited view from the road, the large number of parked easyJet and TUI aircraft were apparent.  Remarkably and despite the lack of traffic, several drivers felt the need to speed.  Having parked in a multi-storey carpark I then needed to avoid touching anything.  Fortunately I had hand gel with me.

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Ever resourceful, the BHOC had established a temporary building in which blood samples could be taken and then sent to the laboratory.  Everyone entering was checked for temperature and any virus symptoms - very thorough.  This new facility, staffed by efficient and cheerful staff worked perfectly.

Today I took a call from a BHOC doctor who confirmed that my blood tests results were fine.  They had even measured my paraprotein level which has now risen to 13.  The bone marrow biopsy I had last month revealed nothing of concern.  Accordingly I will probably not have another appointment for about two months.

The holiday that we had planned for the end of May will not now take place.  We can only wait for the cruise company, Fred Olsen, to notify us and offer "options".

If you want others to be happy, practice compassion
If you want to be happy, practice compassion
Dalai Lama

Keep kind, keep safe, keep well
Stephen