Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Saturday, 25 July 2020

Review 21st July

Last week I again travelled to Bristol to provide blood samples and then this week I was phoned by my haematology consultant. The test results showed an improvement in both my hemoglobin and my platelets.  My paraprotein count had not yet come back from the laboratory.  This latter feature will indicate how my myeloma is progressing.  Never-the-less my consultant was content to wait a further 6 weeks before any decisions about treatment are made.  This suits me, as by then the clinical trials that had been suspended due to Covid19 will have resumed.

In my last post, dated 26th June, you will see that I had been preparing to take on a Samarathon - a total of 26.2 miles walking and flying my drone.

I was keen to get started so on the 1st July I walked on Brean Down - getting well and truly rained on!  I then had to wait for better weather before walking Weston-super-Mare's beach on the 8th.  I decided that I needed to complete the challenge as soon as possible so walked the remaining stages on the 10th/11th/12th/ and 13th.  Each stage was walked at or soon after dawn so that there were few people about and thus more chance to fly the drone in accordance with regulations.  Although getting out of bed so early was an effort, the experience of walking as the sun came up, and nature was so active, was so refreshing.  I have collected almost £600 and I am so grateful to those who sponsored me.

The easiest way to see the videos I produced is to open YouTube and then search for my channel name - PEMPILOT.

One of my walks was along Sand Bay and onto Sand Point.  Sadly the video I took from the drone was faulty.  In addition my research has also drawn my interest to St Thomas' Head which is a former MOD site.  I have in mind to explore that area now!


Click to enlarge


In my May post I told you about our two squirrels Cyril and Cybil.  Cyril, in particular, robs nuts from the bird feeder.  The only solution has been to install a squirrel-friendly feeder just for them.  Only put up today we must now see if the nuts on the outside will be sufficient to attract attention.






Look deep in nature, and the you will understand everything better
Albert Einstein

Keep safe, keep well

Stephen