Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 22 December 2021

Christmas Present




Brought out of storage screaming and kicking (me?) our artificial tree is now around 26 years old.  As such it must surely be carbon-free by now.  


It is festooned with many memories especially of our holiday travels over the years.  It even has our late dog’s squeaky ball.







Over the last few weeks I have been making regular visits to the BHOC.  For some time, Margaret drove me to Bristol but most recently I have thankfully been able to drive myself and relieve her of that burden.  The visits have typically been to have platelet infusions and to have the dressing on my PICC line changed.  

One visit included a Bone Marrow Biopsy.  I have genuinely forgotten how many of these procedures I've had but I think it must be at least twelve!  Yesterday I received a phone call from one of the BHOC doctors who gave me the news that the BMB had resulted in no abnormal plasma cells being detected.  Given that I know that my paraprotein count is reducing to very low levels, the latest news is very encouraging.

In respect of Covid, I cannot be given any vaccine until late January.  I am thus shielding and accordingly so is Margaret.  I've been contacted by the NHS and, should I become infected will be given the new anti-viral treatment nMAb.

The latest news about my BMB has been an extraordinary gift. I wish everyone a very Happy Christmas and a Peaceful and Healthy New Year.

Keep safe, keep well

Stephen