Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Thursday, 3 March 2022

March 2022

Again I find myself able to report several pieces of good news.  Firstly in mid-February I was able to receive my second re-vaccination against Covid.  Rather as anticipated it proved difficult to persuade the administrator that this was to be an intentional re-vaccination.  A doctor was called and she was able to give the necessary authorisation.  Once the jab had become registered on my GP records I then requested and received my Covid Pass.  International travel is now possible!

Later in February I had my fourth Immunoglobulin infusion.  Again I was given pre-medications and thus avoided any reactions - phew!

This week I had a meeting with my consultant who gave me the exceptionally good news that my paraprotein count (measure of myeloma activity) was zero when checked on 1st February.  This news came after I had already been told that my latest bone marrow biopsy had also found no evidence of the cancer.

During the weekend I had taken a walk around our village which is exceptionally hilly.  Much to my surprise I walked much further than normal and without any breathlessness.  I would seem to be slowly getting my fitness back.

Not withstanding the appalling  international situation, this month I rather felt that a cheerful quotation would be in order:

Inside every old person is a young person
wondering what happened.

Terry Pratchett

Keep safe, keep well

Stephen