Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 26 April 2022

April 2022

 Again, quite a bit to report and again nothing bad.  Taking events in order, I've now had my third Covid re-vaccination.  Apart from a somewhat sore arm, I had no side effects.  The short time between jabs had only been possible as I was given Moderna.  

I then had my 5th, and most recently my 6th immunoglobulin infusions.  As before this is a lengthy process involving pre-medications and then the infusion lasting about 3 hours and requiring very cautious monitoring by the nurses.

At the end of March I had yet another Bone Marrow Biopsy.  This time, in addition to the doctor, there was a nurse present.  We were so busy chatting that I genuinely did not experience any pain - remarkable but then I can talk for Britain.  I later received the result of the BMB and a blood test, both of which confirmed that my immune system continues to fight the myeloma which remains undetectable.

Finally I had my influenza and pneumonia jabs.  Remarkably I had no side effects.


This year spring seems to be lasting over quite an extended period.  The daffodils were wonderful but have now gone over.  The magnolia was especially attractive and long lasting.  The trees are only now coming into leaf.

Finally, the bluebells are abundant this year. They gladden our hearts.




When you rise in the morning, give thanks for the light, for your life, for your strength.
Give thanks for your food and for the joy of living.
If you see no reason to give thanks, the fault lies in yourself.
Chief Tecumseh

Keep safe, keep well

Stephen