Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 20 July 2022

JULY 2022

At this month's consultant's appointment, yet again I was given the good news that my myeloma remains undetectable. In addition my neutrophils have improved and I can increase the time between injections.  Also apparent is that my platelets are now showing a slow but recognisable improvement.

This last month has been a busy one.  I've had our boiler serviced having found an excellent local engineer.  Still on the subject of "local", we ordered a new carpet for our dining room.  So what? you might say.  Well, this now meant that I would have to get the re-decoration done! I did find the necessary energy and the result seems fine.



As we are all aware, summer has now arrived with both good and not-so-good results.  

For us, this year's grapes are especially abundant.  They are always small and full of pips but they do make an excellent approximation to port wine!



Given this month's avtivity and exertion, this seems appropriate:


Life begins at the end of your comfort zone
Neale Donald Walsch

Keep safe, keep well

Stephen