Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 25 October 2022

October 2022

My apologies for not keeping my blog up to date.  I should have had a routine face-to-face consultant's appointment but at the time I was suffering a truly bad cold.  In the end it was made over the telephone.  The cold resulted in a course of antibiotics to deal with infected lungs and sinuses. The latter had affected my hearing, making part of my face tender and even influenced my balance.  My GP recognised that the first course of medication was insufficient and so prescribed another.  I now seem to be finally on the mend after three weeks.

This month is significant for two reasons:

- I was first diagnosed in October 2011 so this is the eleventh anniversary
- I received my CAR-T cells exactly one year ago

I have so very much to be thankful for.

I never met a bitter person who was thankful.
or a thankful person who was bitter.

Nick Vujicic

Keep safe, keep well  😀

Stephen