Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Thursday, 10 November 2022

November 2022

I again attended my routine consultant's appointment this week.  Last week I had yet another bone marrow biopsy and I was so very pleased to learn that no myeloma cells were detected.  My last blood test returned the same result.  Truly extraordinary; that after a year I remain is such condition.  I was shown various blood results.  In particular, my platelet count, which had once given such concern, was now very satisfactory.  

My recent cold, despite needing two courses of antibiotic, has still not really cleared up.  Looking deeper at some of my results, the consultant concluded that my immune system, needed to fight such infections, was still compromised.  He has therefore decided to put me on a further course of immunoglobulin.  I've had this before and it comprises six intravenous sessions, once per month.  Each session takes about three hours as reactions are common.  The fact that I am to have this again just shows how much care I receive from the BHOC.






You may recall my intention to harvest our grapes and make something approximating to Port wine.  This I have now done as shown here.  This is my third "colheita" being a Portuguese term for wine of a single year.  


All we have to do now is wait for it to mature.  Meanwhile we have similar wines from two previous years.


No act of kindness, no matter how small, is ever wasted
Aesop

Keep safe, keep well  😀

Stephen