Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 4 January 2023

January 2023

Nearly all good News !

At the end of last month I returned to the BHOC to try Immunoglobulin again.  I won't lie, I was extremely concerned that yet again I would react.  Firstly my preference for Privigen had been respected and it was ready for me. Secondly the nurse was so reassuring.  As things turned out, I need not have worried and I was infused without any drama.  

Yesterday I saw my consultant and, yet again, he gave me the news that my paraprotein remains undetectable. My immune system system is still fighting the myeloma.  He did say that my immunoglobulin level remains very low and I must continue with the scheduled infusions.

With uncharacteristic bad timing, in the run up to Christmas I lost my appetite.  Only now is it beginning to return. Luckily I do enjoy a portion of Christmas pudding.

To everyone,  have a very Happy New Year

Keep safe, keep well 

Stephen