Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Thursday, 16 February 2023

February 2023

The other day I attended my monthly consultant's appointment at which my health is checked and blood samples taken.  Yet again the blood samples taken in January did not identify any paraprotein and other results were satisfactory.  The CAR-T cells continue to fight the myeloma.

Yesterday I attended for my monthly infusion of immunoglobulin.  This can be quite a long process requiring that I am fitted with a cannula.  To avoid any reaction, I am then given pre-medications requiring a wait of 30 minutes for them to take affect.  The immunoglobulin is then administered, initially at a slow rate. After each 1/2 hour the rate is gradually increased.  Throughout the process, my observations are taken to check for any adverse affects.  Overall the process takes about 4 1/2 hours.


Bristol Haematology & Oncology Centre
(Google Earth Image - click to enlarge)


In the BHOC immunoglobulin is given in one of the outpatient departments.  This unit provides a variety of treatments and I am always humbled to see so many patients who are seriously unwell and needing extensive treatments such as platelet and whole blood infusions.  These can last for many more hours than my treatment.  The care and efficiency of the nursing staff is just world-class. 



Keep safe, keep well 

Stephen