Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Thursday, 14 September 2023

September 2023

As usual, this week I attended the BHOC for routine blood tests etc. with nothing to report.

Last week I attended an eye clinic following from a recommendation by a certain high street opticians that I be referred for consideration for cataract surgery.  For some time I have become increasingly aware of glare especially when driving.  

The recommendation indicated that I was "borderline" for need for surgery.  The eye specialist I saw last week said that my need for surgery was "absolute" and that I had (until then) an undiagnosed condition called Fuch's Dystrophy (missed despite repeated visits to that high street opticians).  The condition is a deterioration of the cornea which may delay recovery from the cataract surgery and eventually result in need for corneal transplant  Oh well ! Now I just have to wait for a date for surgery.

One last story to tell. Last month I showed an excellent crop of grapes developing on our vine.  I have always used the principle that when grapes start to drop, they are ready to harvest.


Well, this month that time had arrived and we enjoyed a very healthy crop.  These were duly crushed and fermented.  Unlike previous years, though, the juice has proved to be very acidic.  Despite referring to my Boy's Own book of Oenology (look it up), this year I must accept defeat.  2023 clearly is not a vintage year!

A smile is happiness you'll find right under your nose
Phyllis Diller

This month definitely "KBO"

Stephen