Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Thursday, 8 February 2024

January 2024

OK so not the best start to the year; late posting January's missive.  

January in fact didn't start too well anyway.  I went down with flu at the start of the month.  It lasted only days but then followed with a bad cough.  Even now I still have its remains.  Now I have deafness.  That shouldn't be a problem now that pharmacies can prescribe.  Except that to do so they must be first qualified on the otoscope (look it up) and most seemingly are not yet.  If they did find excessive wax then the NHS no longer offers syringing by GPs.  Seems rather like the failed NHS dental system.  Anyway, never mind, I've got a GP appointment booked before the end of February.

I had my second eye check-up and have now booked an optician's appointment later this month.

Oh, and I've attended two routine consultant's appointments and no I apparently don't need immunoglobulin (there is a national shortage) unless I develop repeated infections (like flu, cough, deafness?)

Just because nobody complains, doesn't mean all parachutes are perfect
Benny Hill

Keep well, keep safe, and "KBO"

Stephen