Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 19 June 2024

June 2024

Nothing medical to report this month really. I attended my routine (non consultant's appointment) where I was asked to complete some surveys.  These are undertaken from time to time and seek to record my health conditions and quality of life.  With regard to the latter, The system also reported that I was at Day 980 as measured from Day 1 when the CAR-T cells were infused. - WOW.

Of note was a trip Margaret and I had on the Waverley.  This is the last and only sea-going paddle steamer.  We joined the ship at Clevedon Pier and first sailed up the estuary to abeam the Avonmouth Docks.  We then sailed down to round both Steap Holme and Flat Holme.  Both islands are steeped (pun) in history.  I was fortunate enough to capture this image of the setting sun.

Sunset at Steap Holme

I was less than fortunate though in that to get the picture I had spent some time on deck in the chill wind.  Early next morning what had been a mild cold had turned into sinusitis and earache.  Even at my age, there is much to learn.

Life comes with pain
Rod Wave

Keep well
Stephen