Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 31 December 2024

December 2024

I find myself writing this on the last day of 2024 and no doubt this evening, despite the weather, will be punctuated with the sound of fireworks.

Today I attended my consultant's appointment and yet again I received the excellent news that I have no identifiable paraprotein and that my light chains are normal. Sadly the consultant I saw was working her last day before retirement. She had chaired the Multi Disciplinary Team at which my treatment was first discussed in October 2011.  I shall certainly miss her. The only other piece of information I received was that I shall be subject to a Bone Marrow Biopsy in February but the date has yet to be arranged.  Oh joy!

At the very end of November we travelled to Poole in Dorset where we attended the very splendid wedding of our younger son.  We had the joy of welcoming another daughter in law and her two sons from her previous marriage. The occasion was so very enjoyable and included catching up with so many family members.

Christmas has, of course, now passed by.  This year Margaret and I travel to stay with our elder son, his wife and their son at the weekend before Christmas.  We were joined by our younger son and his new family for a fully turkey feast with all the trimmings.  For Christmas itself Margaret and I celebrated the occasion quietly at home - bliss.

You are never too old to set another goal or to dream a new dream
C.S.Lewis

It only remains for me to wish everyone a very happy and healthy 2025

Keep well
Stephen