Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 18 February 2014

February Clinic

As I've said in a previous post, it can be difficult to know what to write when there is seemingly little news. I attended clinic today and again my paraprotein is at 5. What was previously described as a "bumpy plateau" is now more like a plateau. So excellent news, my routine blood tests (which are taken at every clinic) are also fine and I continue to feel very well.

Well that's my health news so I'll waffle on about something else then!

Those that know me will be aware that I publish a web site dedicated to my uncle who died in the war. Having marked the 70th anniversary of his death in ceremonies in November last year, and subsequently updated the website, I'd rather thought that there was little else to add. Destiny seemed to have other ideas. Margaret had intended to buy me two books about Wellington bombers for Christmas. In the event Amazon was only able to supply one at the time. The second title "Wellington Squadrons in Focus" has only just arrived. We were both amazed when turning to the page about 142 Squadron, we found a photograph of the exact aircraft in which uncle Stephen flew and crashed.

For reasons of copyright, I can't publish the image here, but do go to the web site at: www.hf694.org.uk/chap6.htm

While you're there, and if you haven't already, also have a look at Chapter 13 which tells the story of the 70th anniversary ceremonies in Italy.

Keep well, keep dry and "KBO"

Stephen