Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Saturday, 17 May 2014

Life is Good !

Following last month's positive post, I can report yet another one !

We're just back from an extended (3 week) holiday in Cyprus. We had a wonderful time and were able to meet up with good friends, enjoy some wonderful Cypriot food and generally relax. This time I managed to limit the amount of work on the house.

One memorable lunch, at a favourite beach restaurant, was preceded by me walking along the coast in the glorious sunshine. I enjoyed the exercise and a shandy made with the local Keo beer awaited my arrival!


Cyprus isn't just Ayia Nappa. If you know where, there are superb secret beaches to enjoy.

On our return to the UK I had my usual visit to see the consultant. My paraprotein has remained at a count of four. Excellent news and especially as I've decided to return to one of my passions - flying. I persuaded by GP to countersign my Medical Declaration and have now traveled to Kemble where I was able to go flying with an examiner and pass my General Skills Test. I can now be issued with a (converted) licence. I'm a pilot again!

Someone recently asked me about "KBO". A good explanation is at:

http://susaneliamacneal.blogspot.co.uk/2009/10/winston-churchill-and-kbo.html

So keep well and KBO

Stephen