Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 9 July 2014

A busy (and good!) month

Firstly, yesterday's visit to see my consultant brought yet more good news. My paraprotein count was again 4 thus indicating a continuing plateau. My LITEs also showed yet further reduction (improvement). I am reminded that it is now 2 years since my stay in hospital. Recent decisions to take on a volunteer role and to return to private flying would seem to have been appropriate. There is no point in simply waiting for relapse. Better to use and enjoy life!

My search for a suitable aircraft to fly has continued. I had viewed one near Yeovil but, at the time, I didn't have a medical signed off or flight test completed. I thus had to let the aircraft slip through my fingers. Another, located in Lincolnshire seemed to be just what I wanted. An all-day journey was thus arranged. All went very well until I decided to climb into the cockpit. Either it was too small, or I was too large. Before my cancer I had been just over 6 feet high. Damage to my spine resulted in a loss of about 2 inches but my leg length would have remained the same. Never-the-less my leg length was too much for this aircraft - a Druine Turbulent. A similar aircraft G-APNZ, which is currently undergoing restoration by the Derby Aero Club, was once flown by HRH the Duke of Edinburgh. He is understood to be 6ft 2ins. It seems unlikely that I will be able to modify the Lincolnshire aircraft to suit my needs. Perhaps the cartoon on its tail, whilst identifying its French design, also says something of the size of its intended pilot !



In the meantime I have been advised that "a certain other aircraft might become available". Let's hope. I've also been researching where I might keep an aircraft and have today been made a firm offer. Sounds promising.

This month's thought (by Leonardo da Vinci):

For once you have tasted flight
you will walk the earth with your eyes turned skywards,
for there you have been and there you will long to return.

Keep well and KBO

Stephen