Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Monday, 10 August 2015

Another Good Month

The title pretty much sums things up. Continuing my desire to return to flying I traveled over to the Peterborough area to inspect a possible aircraft.


This is called a Clutton FRED (Flying Runabout Experimental Design) which was developed by Eric Clutton in the early 1960s. It is single seat, open cockpit and generally referred to as a parasol wing. (Best described as a biplane without the lower wing!) Yet again my legs (which think I am still 6 feet tall) made this aircraft impractical for me - so the search goes on.

I attended consultant's clinic last week and, again, my test results were positive with no detectable paraprotein. Noting that I need to renew travel insurance, the consultant has included in his routine letter that my Disease Status is "complete biochemical response by paraprotein".

Also last week, our elder son brought our grandson over for the day. On his arrival, Finley was keen to help his "Papa" replace a handle on the fridge/freezer:


Later we all (Finley, Margaret, Nick and I) took a bracing stroll along the sea wall at Sandbay. Now I wonder why I had a stiff neck the next day!


I suspect such seemingly insignificant events become the memories of the future.

The best thing about memories is making them
(Anon)

Keep well and YOLO

Stephen