Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 29 December 2015

A Different Christmas

Only a quick update this month. I saw my consultant again and, smiles all round, my paraprotein remains undetectable and my LITEs almost normal.

Since Margaret and I intended to spend Christmas in a hotel (for the first time) this year, we had an early family get-together before the main event. The combination of a two year old grandson and a spaniel might have seemed crazy but all went very well indeed. It was great for everyone to get together. We even took the trouble to walk around the village scoring each lighting display - the more tacky the display, the greater the score !

I had a court sitting the next week and then we traveled to Bath for our planned four day stay in a luxury hotel. In the event some of the gloss was lost on us as by then we both had filthy colds. We were both coughing badly and I developed blocked sinuses leading to deafness. As you will no doubt be agree, the best place to be when feeling less well, is at home. At least we weren't entertaining over this period and Margaret didn't have to cook. We came home on Sunday and little by little we are both beginning to recover.

I'd almost forgotten what is is like to be ill - and I don't like it !

Luxury must be comfortable, otherwise it's not luxury
Coco Chanel

Keep well, YOLO
Stephen