Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Friday, 15 April 2016

They say the boidie’s on the wing

Firstly, I visited my consultant and, yet again, my results were good. My Kappa continues to slowly decrease and my paraprotein remains undetectable. Noteworthy was the fact that my general blood tests results, haemoglobin, white count and platelets were all especially good.

During the last couple of weeks I've become aware of the dawn chorus. Living in the country as we do, this can be surprisingly loud. Unusually we also get a sunset chorus. I guess this is from  those birds who have had an especially good day!

That might then explain the title of this month's post. Well not quite.  After my consultant's appointment and when my prescriptions had become available I drove over to Essex.  The route took me on my least-favourite motorways being the M4 (boring) and the M25 (always congested). The purpose of the trip was to undertake flying training over the next two days or so.


The aircraft I was to flying is a Piper L18c being the military designation for the Super Cub.  This would hopefully prepare me for eventually flying the aircraft of my dreams being a Stits Playboy which has very similar control layout.

The next day I was "treated" to over four hours of instruction including Practice Forced Landings, Stalls (four different types), steep turns up to 60 degrees of bank, and so on.  By the end of the day I'd developed some skill in each of these but my take-offs and landings would require more work !

At the end of the day this "boidie" retired to my hotel very tired but pleased that I'd achieved so much in one day.  Over my evening meal and during a rather sleepless night, I began to have doubts about the advisability of buying and flying the Stits Playboy.  By the morning my mind was made up and I told my instructor that I would not take further training and would not be buying the Stits Playboy. My decision was largely based on the likelihood of not being able to maintain adequate skills after training.

I came home and, having made the decision, slept remarkably well !

I have not failed. I've just found 10,000 ways that won't work
Thomas Edison

Keep well, and remember YOLO
Stephen