Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Sunday, 12 June 2016

Sunshine and Music

Again my consultant is content with my results which are good and I'm still in remission.  I realise that it is time to update my blog and fortunately my calendar, which is always fairly full, gives me inspiration regarding content!

Notably, Margaret and I had an excellent trip to Cyprus again. It was wonderful to feel the warmth of the sun, to meet good friends and to enjoy the island's food and hospitality.

This picture shows our favourite beach at Evidimou.


We always make a point of having lunch here at the beach-side restaurant where we order "222" - that is two grilled halloumi, 2 lountza (smoked pork loin) and two fried eggs. Served with chips, salad, and a shandy it's not especially good for us but oh so tasty!

Yesterday evening we were treated to a concert in the Colston Hall in Bristol. This featured the Royal Philharmonic Orchestra (oh they did sound so good). The first half included "Thus spoke zarathustra", Strauss' Blue Danube Waltz, 2nd movement Beethoven's 7th symphony, and John Williams' Star Wars Theme.  The second half comprised Gustav Holst's Planets Suite which was enhanced by NASA images, projected onto a big screen, of each of the heavenly bodies. An amazing experience! You will have realised by now that the theme was the solar system.

And so to choose this month's saying:

Life isn't measured by the number of breaths you take,
but the number of moments that take your breath away.


Keep well, and remember, YOLO
Stephen