Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 31 August 2016

A Peaceful Month

After last month's celebration of my 50th maintenance cycle, little has happened since.  I visited my consultant yesterday and being the day after the bank holiday, the hospital was extremely busy.
Again my paraprotein was undetectable and my Kappa was stable.

Looking back through my diary I've had a relatively peaceful month.  One notable event was yet another spectacular concert at Colston Hall.  We were also invited to a lunchtime concert which featured the Choir of St Peter Bexhill-on-Sea.  Associated with this church is a very great and long-standing friend of Margaret.  The concert was in Bristol Cathedral but never-the-less I had not expected what proved to be a very professional sounding choir.  I had the very good fortune to also discover a piece of music I had never heard before - Eric Whitacre's Seal Lullaby.  This is quite enchanting and can be heard on YouTube.

Where words fail, music speaks
Hans Christian Andersen

Keep well, and remember, YOLO

Stephen

Thursday, 4 August 2016

Truly Privileged

On Tuesday I attended consultant's clinic and, again, my test results were good with no detectable paraprotein and stable free light chains.  This meant, as hinted last month, that I was prescribed for maintenance cycle number 50. It is now a clear 4 years since I was discharged from having high dose therapy and stem cell transplant.

The significance of my 50th cycle did not go unnoticed  My trials nurse had provided a cake which was shared with my consultant and no doubt others later. For my part I decided to distribute a thank you card to those doctors, nurses and ancillary staff who have contributed to my current happy situation.



It is difficult to express just how privileged I feel to have come this far. In the last four years I have been so incredibly fortunate.  In 2013 our grandson, Finley was born.  I have been able to watch him grow ever since.



Later that in 2013, we travelled to Italy to commemorate the 70th anniversary of my uncle's death in World War II.  This was such a significant event which is recorded on my web site at www.hf694.org.uk

In October 2014 I had the honour to be appointed as a Magistrate. This had been a long-held wish and one which gives me so much fulfilment. 

In November 2015 Margaret and I celebrated our 40th wedding anniversary (which I even remembered!). 

In May this year we travelled to Scotland to witness the marriage of our younger son Chris to the love of his life, Becks: A truly joyous occasion.


Finally, as anyone who knows us will tell you, we have enjoyed so may holidays, especially in Cyprus. 

Through all this and most importantly I have enjoyed the love and support of my wife Margaret.

When you arise in the morning, think what a precious privilege
 it is to be alive - to breath, to think, to enjoy, to love
Marcus Aurelius

I am truly privileged. Keep well, and remember, YOLO
Stephen