Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 31 August 2016

A Peaceful Month

After last month's celebration of my 50th maintenance cycle, little has happened since.  I visited my consultant yesterday and being the day after the bank holiday, the hospital was extremely busy.
Again my paraprotein was undetectable and my Kappa was stable.

Looking back through my diary I've had a relatively peaceful month.  One notable event was yet another spectacular concert at Colston Hall.  We were also invited to a lunchtime concert which featured the Choir of St Peter Bexhill-on-Sea.  Associated with this church is a very great and long-standing friend of Margaret.  The concert was in Bristol Cathedral but never-the-less I had not expected what proved to be a very professional sounding choir.  I had the very good fortune to also discover a piece of music I had never heard before - Eric Whitacre's Seal Lullaby.  This is quite enchanting and can be heard on YouTube.

Where words fail, music speaks
Hans Christian Andersen

Keep well, and remember, YOLO

Stephen