Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 26 October 2016

Travel and Honour

Firstly I attended my routine clinic yesterday and, again, my results were excellent.  I still have no detectable paraprotein and my Kappa continues to slowly reduce.  My consultant seems so confident in my situation that I was actually seen by the Myeloma Pharmacist thus saving the precious resource of consultants for those patients less fortunate than me.

I didn't need to refer to my calendar this month to know we had been busy.  Margaret spent the early part of the month attending many book-related events.  We then travelled to Cyprus for 10 glorious days.


The view is west towards Aphodite's Rock which is nearly on the horizon.  As you can see the weather was just superb. Our first day was rather too hot at 32 degrees but thereafter it calmed down to an average of 28 degrees.  The lowest temperature at breakfast was 21 degrees !

The wonderful weather also brings problems.  Cyprus has not had normal winter rainfall for two years.  We visited one of the reservoirs and its level was precariously low.  We can only hope that things will improve this winter.

We flew back to Bristol arriving in the early hours of Sunday.  Then on Monday we travelled by train up to London.  We were honoured to attend the Light Aircraft Association 70th anniversary dinner which was held in the RAF Club in Piccadilly in the presence of HRH Prince Michael of Kent.
It was wonderful to be amongst so many like-minded people (pilots !), to eat and drink from RAF crested china and glassware and to be treated to entertaining speeches in such wonderful surroundings.


We stayed overnight in a London hotel before an early start back to Bristol for my monthly appointment.  I shall relish a few days of rest before a planned visit to an air safety meeting north of London !

Collect moments - not things
Ankit Mishra

Keep well, and remember, YOLO
Stephen