Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 12 April 2017

A Spring in my Step

As previously mentioned, I decided to pause adding posts.  The previous one was in January, during what turned out to be a surprisingly (but welcome) benign winter.  We had no snow that settled, and I only had to clear ice from my car on two occasions.

Spring is now truly with us and was first signalled by the primulas.  They seem so fragile and yet survive all manner of abuse.  Those that come up in the lawn (sorry: area of green moss) get mowed and yet reappear time and time again.


And as if to compete, the magnolia has excelled itself this year.


Of course the petals are falling like confetti, as was exemplified when I shook the tree before mowing them up.  I looked almost matrimonial !

Perhaps the most significant event since my last post is that I have completed writing a book about my Uncle Stephen, who was killed in the Second World War and after whom I was named.  With some effort I then succeeded in having it published using a wholly on-line system.  The artwork for the cover is slightly off-centred but I am content.  


The purpose of the book is to create a truly lasting memorial.  It is noteworthy that a web site is not.  I have now submitted copies to the British Library and the five other Legal Deposit libraries so I have achieved my ambition.  Other copies have been sent to the RAF Museum, to my uncle's former school, and to members of my family, Should you be so interested, the book is available through Amazon on Kindle and also as a hardback.  The latter is subject to print-on-demand which may take some time to arrive.

Since last writing, I am pleased to report that my cancer remains in remission with my consultant's expressing their continued satisfaction.

This month's saying comes from something I noticed on the TV and rather sums up my attitude:

Do what you can't

Keep well

Stephen