On Monday, I had to provide a last blood test to check, amongst other things, that my paraprotein level (a measure of myeloma activity) was within the specified limits of the Myeloma XII trial. Having been stable for some time at a count of 6, it had risen to 11 and thus, apparently, beyond the limits. I'm not entirely surprised because I'd been off any treatment for a month but this could have reduced my treatment options. Yesterday I returned for a further test and fortunately the count is now 10 and within the limits thus allowing the next stage to proceed. Any research of myeloma will show how patients suddenly find that there are fewer options so initially to be told that I might not be able to continue in the trial was very worrying. This affects not just me but also Margaret and our two sons. Over the last week both Chis and then Nick have found time in their own busy lives to travel up and see us. It has been so good to see them. Thanks guys.
This morning, my trials nurse phoned to confirm the result of my randomisation. At this stage in the trial, two options are possible; Firstly conventional high dose therapy, and secondly augmented high dose therapy. The latter includes the inclusion of the novel drug called Ixazomib. In the event my result is to receive conventional high dose therapy (with a drug called Melphalan) immediately followed by stem cell transplant. Accordingly, on Monday I have a clinic appointment for the installation of a central line called a PICC and then I should be admitted onto the ward for immediate high dose therapy.
It is my hope to that my next post will confirm my admission and then a day-by-day account of my hospital treatment.
As a rule, men worry more about what they can't see
than about what they can.
Julius Caesar
KBO
Stephen
