Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 13 February 2019

February 2019 Update

If you watch breakfast television, you may have seen an inspirational appeal by a young boy that people volunteer as stem cell donors in the hope that his father, who has myeloma, might live longer.  The item identified DKMS as a means to register.  An alternative is, of course, Anthony Nolan. 

This then got me thinking about blood donation.  I had once been a blood donor and then a platelet donor.  Over the last few years I have needed platelets for which I am so grateful.  I have also seen patients who are much more poorly than me and are reliant on blood transfusions simply to stay alive. 

This week I attended my routine clinic.  Since the one in January, I have decided to return to my Magistracy duties and in fact have already sat on three occasions.  It's good to be back !  At this clinic all was well although my platelet count was a little low.  The doctor thought this was likely to be due to me having a viral infection (a cold).  Also confirmed was that in January my paraprotein count had reduced to 7 indicating response to the high dose therapy and stem cell transplant which I had in December.  My November count had been 10 and, when I am reviewed after 100 days to see whether I qualify to remain in the trial, I must have a count lower than this.  Only time will tell.

Since December I've gradually put back the weight I lost during my two weeks in hospital. For now, I'm glad to have returned to fairly normal life.

Winter is the season of recovery and preparation
Paul Theroux

KBO
Stephen