Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 9 October 2019

Setback Sorted - Maintenance #5

I forgot to update readers with my situation.  I did return to clinic at the limit of extension to my trial cycle number 4.  A further blood test required another extended wait for laboratory results.  Eventually I was told that the result was sufficient to continue onto maintenance cycle 5.  Accordingly I then waited for my medications to be dispensed.  Only when I went to the pharmacy was I told that they didn't have stock of the reduced dose Ixazomib: I would have to come back when it had been delivered.

Two days later I was advised that the medications were now available for collection so I drove, yet again, into Bristol.  At first my package could not be found: A matter which required a "certain amount of patience" on my part!  Luckily it was found and I'm now into maintenance cycle number 5.

One extra detail to report.  Having had paraprotein readings of 6 for some time, and thus a plateau, my latest consultant's letter indicates a rise to a count of 7.  Best not to draw any conclusions yet.

Any time you suffer a setback or disappointment,
put your head down and plough ahead.
Les Brown

KBO and Keep well
Stephen