Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Tuesday, 19 January 2021

DARA Cycle 7

Very little to report.  I spoke to my consultant today and my treatment continues with cycle number 7. One of the measures called serum free light chain has continued to fall indicating at least some response to treatment.  My paraprotein levels also indicate some response.  Importantly the myeloma doesn't seem to be doing me any damage and my pain levels have been brought under control.  

My most recent blood test indicates that I will require a further platelet infusion on Friday but at least I already had an appointment booked for that very purpose.  Soon (in six weeks time) I will have completed cycle 9 and will move to treatment that only involves Daratumumab maintenance and importantly not requiring Velcade (which rends to lower my platelets).  I will then be able to start the process of building my platelet count back up again.

Keep safe, keep well and KBO

Stephen