This week has been nothing short of busy. On Tuesday I got a phone call inviting me to
a PET CT scan at Southmead hospital. I
agreed an appointment the following day.
I then got a phone call advising me of a blood test at the BHOC on
Friday. Lastly I received a letter
advising me of an appointment for an MRI scan that very day (which I had
missed). I spent a frustrating time
trying to call the correct department.
Eventually it was agreed that I would attend on Saturday. Prior to my blood test on Friday I was phoned
by the trials team and given the excellent news that I have been accepted into
the trial, that I have a clinic appointment in June (at which I will sign my
consent) and an apheresis appointment (at which my T-cells will be harvested)
the following day. I am checking to see
whether the latter appointment indicates whether I have already been randomised
onto Arm B of the trial or whether this is simply a reservation. (Arm A is
traditional chemotherapy whilst Arm B is the CAR-T cell therapy)
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PET CT Scanner - Click to enlarge |
The second image is the CT (Computed Tomography) which produces cross-sectional images of the body in far greater detail than standard x-ray images.
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MRI Scanner - Click to enlarge |
I understand that the results of the two scans and the blood test will be discussed at next week’s Multi-Disciplinary Team (MDT) meeting. Hopefully from that will be a decision if I need any immediate treatment. Just to keep me on my toes, when I got home from Friday’s blood test I was phoned to advise me of an appointment for a Bone Marrow Biopsy. This will be my ninth. I’ll leave you to look up the procedure elsewhere ! I’ve also received a further appointment, the details of which I don’t understand but it may be for radiotherapy – oh joy, that might involve two hard and flat tables: one for calibration, one for treatment.
Notable is how quickly I have received tests given the
pressure on the health service. I’m also
so very fortunate to live at a time when such advanced technologies are
available and, through the NHS, free of charge.
They’re welcome
challenges, tests
Paul Walker
Keep safe, keep well and KBO
Stephen