Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Sunday, 31 October 2021

Cartitude 4, HOME !

As you will have realised from the title, I have been discharged from the BHOC.  This happened on Friday after a long and frustrating wait for all the necessary administration to be concluded.  Margaret collected me and we finally got home (having collected fish and chips on the way) at about 6-30pm.

My discharge relied on me not having a raised temperature for at least 24 hours.  I had been given a drug (Tocilizumab) which calmed many of the CRS symptoms.  It worked !

During the last three weeks I have received what is arguably the most advanced treatment for myeloma.  I cannot even begin to explain how important Margaret's support has been for me, and I have been cared for by a world-class team in the BHOC.  I am now back home.  

I am indeed very fortunate.

Keep safe, keep well
Stephen