Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Sunday, 19 May 2019

Maintenance

During last week, I again attended clinic.  Having now completed two cycles of Consolidation I can, at last, proceed onto Maintenance.  The last two months, just as I predicted, have been rather less than pleasant being characterised by some side effects.  Hopefully they will now wear off.  Maintenance simply involves taking the trial drug on days 1, 8 and 15 of each 28 day cycle.

Once I'd had a blood test, the consultant prescribed me for the first cycle.  It also became clear that I must succumb to yet another bone marrow biopsy - oh joy.  Next week I have my last pentamidine then life will simplify.






Now over 20 years old, our three climbing roses (Princes Trust) continue to delight us.  The first blooms are just beginning to show.  Soon the plants will be covered with fragrant blooms.  The only problem will be the weight of the flowers requiring some judicious supporting









Next week, as I approach the ripe old age of 70, I shall retire from being a magistrate.  More accurately I shall "be retired" since that is what the rules currently require.  To be fair to the system, I have always known this.  I shall certainly not miss the commute into Bristol but I will miss the role.  It has been both challenging and rewarding.  It has also been a privilege to be given the ability to change someones life.  I shall miss the quality of the people on whom the court depends: The witness support volunteers, The court ushers who have to deal with witnesses and defendants (some of whom can be hostile), The Legal Advisors who do their best to keep us lay magistrates within the law, and of course my JP colleagues. I shall certainly miss this and have already started to look for similar positions.

The purpose of life is to live it, to taste experience to the utmost,
to reach out eagerly and without fear for newer and richer experience
Eleanor Roosevelt

Keep well
Stephen