Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 25 May 2022

MAY 2022

Yet again another month with excellent news.  My consultant explained that my last test for paraprotein was negative so the CAR-T cells continue their role.  My platelet count remains low but this is not causing any problems. My neutrophil level is too low requiring that I return to self-administered (injected) GCSF.

Since my last appointment, Margaret and I have had a week's holiday in Cyprus where the temperature was in the mid 20s - perfect.  We pampered ourselves staying in a luxury hotel.  Having spent so long in the peace and quite of isolation and even when attending hospital, at least 2 metres from anyone, the experience of being on an aircraft was quite unnerving.  The cabin was noisy and my fellow passengers were just 18 inches away.




Despite a "7 day" holiday only actually being 5 days due to travel, we still had a wonderful time.

Here I'm enjoying a shandy (honest) at our favourite restaurant at Avdimou Beach.

Sheer bliss.








The most beautiful thing in the world is, of course,
the world itself
Wallace Stevens

Keep safe, keep well

Stephen