Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Friday, 24 June 2022

JUNE 2022

At my monthly consultant's appointment I was again told that everything is fundamentally OK.  At last month's blood test paraprotein remained undetectable.  The CAR-T cells continue their fight against any myeloma.  Both my Haemaglobin and platelet counts had improved.  My neutrophil level was still lower than preferable and I was instructed to self administer GCSF more often.

A few days ago, my clinical trial nurse phoned me to check that I have had or would shortly have a "Reinforcing (Booster) Covid vaccination.  I had previously received a letter from the NHS and the timing was perfect being a minimum of 3 months since my last vaccination.  I was able to book an appointment locally this week.  I have so far had my original two doses.  I then had to have a course of 3 doses after receiving CAR-T cell infusion.  This. then. will be my sixth vaccination!




Yet again we have the very good fortune to be looking after a certain black spaniel whilst our son and his girlfriend take a well-earned short holiday.








Those who wish to sing, always find a song
Swedish Proverb

Keep safe, keep well

Stephen