Summary Text

SUMMARY: First diagnosed with myeloma October 2011. Recruited onto clinical trial Myeloma X11 (Lenalidomide) at Bristol Oncology and Haematology Centre. First High Dose Therapy and Stem Cell Transplant (HDT&SCT) in July 2012. On maintenance until June 2017. June 2018 recruited onto Myeloma XII trial (Ixazomib). December 2018 Second HDT&SCT. On maintenance until February 2020. August 2020 Commenced treatment involving Daratumumab. April 2021 relapsed. June 2021 recruited onto Cartitude 4 clinical trial and infused with CAR-T cells in October 2021. My own immune system is now fighting the cancer . I am exceedingly fortunate.


Wednesday, 9 July 2014

A busy (and good!) month

Firstly, yesterday's visit to see my consultant brought yet more good news. My paraprotein count was again 4 thus indicating a continuing plateau. My LITEs also showed yet further reduction (improvement). I am reminded that it is now 2 years since my stay in hospital. Recent decisions to take on a volunteer role and to return to private flying would seem to have been appropriate. There is no point in simply waiting for relapse. Better to use and enjoy life!

My search for a suitable aircraft to fly has continued. I had viewed one near Yeovil but, at the time, I didn't have a medical signed off or flight test completed. I thus had to let the aircraft slip through my fingers. Another, located in Lincolnshire seemed to be just what I wanted. An all-day journey was thus arranged. All went very well until I decided to climb into the cockpit. Either it was too small, or I was too large. Before my cancer I had been just over 6 feet high. Damage to my spine resulted in a loss of about 2 inches but my leg length would have remained the same. Never-the-less my leg length was too much for this aircraft - a Druine Turbulent. A similar aircraft G-APNZ, which is currently undergoing restoration by the Derby Aero Club, was once flown by HRH the Duke of Edinburgh. He is understood to be 6ft 2ins. It seems unlikely that I will be able to modify the Lincolnshire aircraft to suit my needs. Perhaps the cartoon on its tail, whilst identifying its French design, also says something of the size of its intended pilot !



In the meantime I have been advised that "a certain other aircraft might become available". Let's hope. I've also been researching where I might keep an aircraft and have today been made a firm offer. Sounds promising.

This month's thought (by Leonardo da Vinci):

For once you have tasted flight
you will walk the earth with your eyes turned skywards,
for there you have been and there you will long to return.

Keep well and KBO

Stephen

Thursday, 12 June 2014

Another Very Good Month

The title says it all....

Firstly my myeloma status. On Tuesday, for the 3rd month in a row my consultant confirmed that my paraprotein level was 4. Having had a plateau of 5 for so many months, it is possible that I now have an even lower one. The consultant also checked my Free Light Chain Assay (now referred to as LITEs). This test is being increasingly used as a diagnostic and monitoring tool for myeloma. It is understood to be more sensitive than the paraprotein level. There are two important measures: the finite value and the ratio between the two light chain readings. My LITEs for the last two months have been the lowest since first measured. All this indicates that I'm doing very well - and I feel excellent.

That shiny pilot's licence that I mentioned last month has arrived from our CAA. Now I just need to identify a suitable aircraft.

The highlight of our month has been a visit by my cousin and her husband who live in Tasmania. It was wonderful to have them stay with us and to spend the time getting to know them both. My cousin had expressed the wish to visit a real pub. Now where I live, in a tourist dominated area, real pubs are hard to find. Most establishments have little history, serve packet food, and lager (yuck!). Fortunately I know of one pub, tucked away in a nearby village which is frequented by locals (always a good indicator), serves truly excellent value food, and offers a variety of genuine cask beers (and ciders). It seems that the landlord is a former brewmaster - and it shows.

No picture this month - but very good news.

This month's thought: The difference between try and triumph is a little umph

Keep well and KBO

Stephen

Saturday, 17 May 2014

Life is Good !

Following last month's positive post, I can report yet another one !

We're just back from an extended (3 week) holiday in Cyprus. We had a wonderful time and were able to meet up with good friends, enjoy some wonderful Cypriot food and generally relax. This time I managed to limit the amount of work on the house.

One memorable lunch, at a favourite beach restaurant, was preceded by me walking along the coast in the glorious sunshine. I enjoyed the exercise and a shandy made with the local Keo beer awaited my arrival!


Cyprus isn't just Ayia Nappa. If you know where, there are superb secret beaches to enjoy.

On our return to the UK I had my usual visit to see the consultant. My paraprotein has remained at a count of four. Excellent news and especially as I've decided to return to one of my passions - flying. I persuaded by GP to countersign my Medical Declaration and have now traveled to Kemble where I was able to go flying with an examiner and pass my General Skills Test. I can now be issued with a (converted) licence. I'm a pilot again!

Someone recently asked me about "KBO". A good explanation is at:

http://susaneliamacneal.blogspot.co.uk/2009/10/winston-churchill-and-kbo.html

So keep well and KBO

Stephen

Tuesday, 15 April 2014

April Clinic - Springtime !

The title says it all - it's spring !


Winter is finally behind us and as the weather starts to warm again the signs of spring are everywhere to be seen. Our daffodils have been wonderful, now come the tulips and cherry blossom. From the image above you will see that our magnolia tree is excelling itself this year.

By now you will have realised that all is well ! I've visited my consultant today and my paraprotein has actually fallen to 4. This is truly excellent news.

Keep well and KBO

Stephen